Announcements

SMA PRIORITY SETTING PROJECT #mysay4SMA

Help influence the future of research into spinal muscular atrophy (SMA). Tell us the questions you want answered by research through...

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Announcements

INITIATION OF THE SMA JOURNEY PROJECT: THE PATIENT EXPERIENCE We are pleased to announce the initiation of our project for the mapping and...

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Announcements

MDA HELLAS : 2022 STRIVE AWARD WINNER!

It is an honor for MDA Hellas to have been selected among the four award recipients of this year’s #STRIVEAward  of  PTC Therapeutics...

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Announcements

ALS : ΕΓΚΡΙΣΗ ΤΟΥ RELYVRIO ΑΠΟ ΤΟΝ FDA

Η Amylyx Pharmaceuticals ανακοίνωσε την έγκριση του RELYVRIO (AMX0035) από τον FDA, ως...

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Announcements

Ανακοίνωση

Σε συνέχεια της σχετικής απόφασης του Διοικητικού Συμβουλίου του Σωματείου...

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Announcements

Declaration of DM Awareness Day

Since MDA Hellas is one of the Board Members of Euro -DYMA, Federation of European Myotonic Dystrophy Associations, we are happy to...

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Announcements

Key Principles on Newborn Screening Program (NBS) – Eurordis

Key Principles on Newborn Screening Program (NBS) – Statement Position by Eurordis “Our vision is harmonized newborn screening...

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Announcements

Universal Health Coverage for Patients with Rare Diseases

Every year, 100 million people are driven into poverty because medical care costs much more than they could afford. Millions of people,...

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Announcements

COVID – 19 and vaccines: advices from World Muscle Society

Read the following document on advices for people with Neuromuscular Disordes and the vaccination for COVID-19 disease:...

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Announcements

MDA Hellas’s Proposal to the Ministry of Health

MDA Hellas ‘s proposal to the Ministry of Health in relation to the addition of Spinal Muscular Atrophy (SMA) in the Newborn Screening...

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