Announcements

Declaration of DM Awareness Day

Since MDA Hellas is one of the Board Members of Euro -DYMA, Federation of European Myotonic Dystrophy Associations, we are happy to...

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Announcements

Key Principles on Newborn Screening Program (NBS) – Eurordis

Key Principles on Newborn Screening Program (NBS) – Statement Position by Eurordis “Our vision is harmonized newborn screening...

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Announcements

Universal Health Coverage for Patients with Rare Diseases

Every year, 100 million people are driven into poverty because medical care costs much more than they could afford. Millions of people,...

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Announcements

COVID – 19 and vaccines: advices from World Muscle Society

Read the following document on advices for people with Neuromuscular Disordes and the vaccination for COVID-19 disease:...

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Announcements

MDA Hellas’s Proposal to the Ministry of Health

MDA Hellas ‘s proposal to the Ministry of Health in relation to the addition of Spinal Muscular Atrophy (SMA) in the Newborn Screening...

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Park Run Series

Sports and Offer work together for a good cause!  A really important effort is made by the organizers, not only to reveal the importance...

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6th Moraitis Run supports FINISH LINERS!

Moraitis Run 2019 is a unique road race among pine trees in the streets of Paleo Psychiko, is back again for sixth consecutive year, under...

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Summer Party with 48 hours feat. Lukia at the MDA Hellas House  

Friday the 13th, and we set aside all the prejudices in the best way: Super Summer Party with the popular fun band 48 Ores feat. Lukia in...

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7/9/2018 – 5th World Awareness Day for Duchenne Muscular Dystrophy (WDAD)

7/9/2018 – 5th World Awareness Day for Duchenne Muscular Dystrophy (WDAD) Celebrating the 5th World Awareness Day for Duchenne...

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