Standards of Care DMD/BMD

For more details on patient care, consult the “Standards of Care” and the latest articles related to them (23/1/2018):

  1. Birnkrant D.J., Bushby K. et al., Diagnosis and Management of Duchenne Muscular Dystrophy, Part 1: Diagnosis, and Neurosurgery, Rehabilitation, Endocrine, and Gastrointestinal and Nutritional Management, The Lancet, 2018.
  2. Birnkrant D.J., Bushby K. et al., Diagnosis and management of Duchenne muscular dystrophy, Part 2: respiratory, cardiac, bone health, and orthopedic management, The Lancet, 2018.
  3. Birnkrant D.J., Bushby K. et al., Diagnosis and Management of Duchenne Muscular Dystrophy, Part 3: primary, emergency management, psychosocial care, and transitions of care over the lifespan, The Lancet, 2018.

Family Guide :  MDA DMD Family Guide

Duchenne Standards of Care Videos, by World Duchenne Organization: https://www.youtube.com/watch?v=YFS8x59mrco&list=PLi4jXxW5UG9gZRGSJMwrTrUahC4U8Xj62&ab_channel=WorldDuchenneOrganization  

Updated information on nutrition:  https://drive.google.com/file/d/1hvT_w19poEjQEqhyFBa42wrHbJPqmTQl/view?u…

 

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