admin, Author at MDA Hellas

November 15, 2022| Announcements

SMA PRIORITY SETTING PROJECT #mysay4SMA

Help influence the future of research into spinal muscular atrophy (SMA). Tell us the questions you want answered by research through...

November 11, 2022| Announcements

INITIATION OF THE SMA JOURNEY PROJECT: THE PATIENT EXPERIENCE We are pleased to announce the initiation of our project for the mapping and...

October 31, 2022| Announcements

It is an honor for MDA Hellas to have been selected among the four award recipients of this year’s #STRIVEAward of PTC Therapeutics...

October 5, 2022| Announcements

Η Amylyx Pharmaceuticals ανακοίνωσε την έγκριση του RELYVRIO (AMX0035) από τον FDA, ως...

February 1, 2022| Announcements

Σε συνέχεια της σχετικής απόφασης του Διοικητικού Συμβουλίου του Σωματείου...

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February 26, 2021| Announcements

Since MDA Hellas is one of the Board Members of Euro -DYMA, Federation of European Myotonic Dystrophy Associations, we are happy to...

February 8, 2021| Announcements

Key Principles on Newborn Screening Program (NBS) – Statement Position by Eurordis “Our vision is harmonized newborn screening...

January 11, 2021| Announcements

Every year, 100 million people are driven into poverty because medical care costs much more than they could afford. Millions of people,...

January 7, 2021| Announcements

Read the following document on advices for people with Neuromuscular Disordes and the vaccination for COVID-19 disease:...