THE SMA JOURNEY PROJECT
PATIENT’S EXPERIENCE
…goes on!
Σας ευχαριστούμε για την θερμή σας ανταπόκριση στο Project του Σωματείου μας με τίτλο
«Χαρτογράφηση και κοστολόγηση του ταξιδιού των ασθενών με Νωτιαία Μυϊκή Ατροφία (SMA) και παρουσίαση ολοκληρωμένου Σχεδίου Δράσης για την προτυποποίηση και βελτιστοποίηση της περίθαλψης».
Αναμένουμε και σας ενθαρρύνουμε να συμπληρώσετε όλο και περισσότεροι το ερωτηματολόγιο γιατί…
Η εμπειρία σας είναι καθοριστική για την ορθή αποτύπωση της πορείας της πάθησης και η συμμετοχή σας θα βοηθήσει η αποτύπωση αυτή να γίνει στο μεγαλύτερο δυνατό κι αντιπροσωπευτικό ποσοστό.
Μέσα από αυτή την έρευνα θα συμβάλλετε κι εσείς ώστε να βελτιωθεί η ποιότητα ζωής για πολλούς συνανθρώπους μας.
O λόγος σας έχει σημασία!
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